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Autism spectrum disorder (ASD)

9-minute read

Key facts

  • Autism spectrum disorder (ASD) is a developmental condition that affects how you behave and interact with the world.
  • People with ASD have difficulty with communication and social situations as well as repetitive or restricted behaviours and interests.
  • There is a wide range of symptoms and levels of support needed by people with ASD.
  • If you suspect your child may have ASD, it’s important to get a diagnosis and start treatment as early as possible.
  • A wide range of therapies and supports are available to help people with ASD develop skills for life.

What is autism spectrum disorder (ASD)?

Autism spectrum disorder (ASD) is a lifelong developmental condition. It affects how people behave and interact with the world around them.

People with ASD will all have different experiences and need different levels of support. Along with some challenges, a person with autism will also have a range of strengths.

Health professionals used to think that Asperger's syndrome and autism were separate conditions. It is now understood that they are both part of one condition, called autism spectrum disorder or ASD.

About 1 in 100 Australians has ASD.

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What are the symptoms of ASD?

The main symptoms related to ASD fall into 2 broad areas:

The features of ASD usually start in infancy, but they may not be noticeable until the age of 18 months or older. Sometimes ASD is only noticed much later in life.

Children

For young children with ASD, signs of social difficulties may include:

Signs of behavioural difficulties in young children may include:

There may be different signs of autism at different ages. In older children with ASD, signs may include:

Adults

In adults, ASD symptoms may include:

What causes ASD?

ASD is caused by differences in how the brain develops. It is not fully understood why this happens. There is probably a genetic component, since you are more likely to have ASD if someone in your family also has autism.

Research into other potential causes is ongoing.

Autism is not caused by:

When should I see my doctor?

If you think your child has ASD, see your doctor or child health nurse. A formal diagnosis will enable your child to receive the help and support they need.

If you are an adult and you think you may have symptoms of ASD, consider talking to a health professional about it. It’s your choice if you want to find out whether you have ASD.

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How is ASD diagnosed?

If your doctor thinks your child may have ASD, they will refer you to a specialist to confirm the diagnosis. This may be a paediatrician, a psychiatrist or a psychologist.

The specialist uses a set of standard tests, such as questionnaires and checklists, to make a diagnosis. They will ask you questions about your child’s development and behaviour and observe the way your child acts and plays. This may require a few appointments.

A diagnosis of ASD will also include assigning your child a level between 1 and 3. This refers to how much support your child requires — 1 being the lowest level of support and 3 being the highest.

ASD in females

There are 3 times more males than females diagnosed with ASD. It is thought that ASD is underdiagnosed in females. There are several reasons for this.

Studies show that females with autism have different symptoms compared to males with autism. Females are more likely to have:

Doctors and teachers may be less familiar with the signs of ASD in females. The tests used to diagnose ASD are also more likely to detect symptoms that are more common in males.

Many females find out they have autism in adulthood.

How can I manage ASD?

Many therapies and supports are available to help your child learn the skills they need for everyday life.

Finding the right program for your child can be confusing. You can visit Autism: What Next? to guide you through this process.

Ensure that the therapies, treatments and supports you choose are evidence-based — meaning that scientific research has shown them to be helpful. Avoid treatments that offer a ‘cure’ or ‘recovery’. There is no evidence to support these claims.

Young children

It’s best to start treatment as early as possible. The right support and programs will help your child improve their social skills, learn to manage their emotions and reach developmental goals. Treatment programs tailored to individual needs often have the best results.

You may choose for your child to attend a supported playgroup or an early learning centre for children with ASD.

School-aged children

Children with ASD can go to a mainstream or special school. Find out more about schooling options for children with ASD.

Different therapies may be helpful for your child:

Find out if your child is eligible for the National Disability Insurance Scheme (NDIS) which can help provide funding for therapies.

People with ASD may also have another mental health disorder, such as anxiety. Talk to your doctor about getting treatment under a mental health care treatment plan.

Adults

If you are an adult with ASD, there are different ways to get the help you need. Therapies that may be helpful include these:

You may wish to seek help with accommodation options, finding work or attending a social group for adults with autism. Visit Autistics’ Guide to Adulthood for more information.

Misunderstandings about ASD

There are many misunderstandings about ASD that can be harmful. These make it harder for people with ASD to get the support they need.

Here are some facts about ASD that are often misunderstood:

People with ASD are ‘neurodivergent’. This means that different people’s brains work in different ways, and that being different from what is ‘typical’ or common is not necessarily a problem. The term neurodivergent also includes those with conditions such as dyslexia and attention deficit hyperactivity disorder (ADHD).

Sometimes the term ‘high-functioning’ is used to describe someone with autism. It is usually used to clarify that they do not have an intellectual disability. This term is not accurate, as someone with ASD with normal intelligence may still have difficulty with their day-to-day functioning. Characterising ASD this way can prevent people with ASD from receiving the support they need.

Personal stories — video

Support for carers

Caring for a person with ASD is a lifelong commitment. There are support services available such as counselling and respite. You may want to join a support group. Carers Gateway can give practical information and useful resources. You can also learn more about carers' support and services in your state or territory through Carers Australia.

Autism Awareness Australia also offers self-care tips and helpful links and resources.

Resources and support

For more information about ASD visit:

To find out more about specific therapies for ASD, visit Raising Children Network.

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