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Emphysema

9-minute read

If you or someone else is having severe trouble breathing, call triple zero (000) immediately and ask for an ambulance.

Key facts

  • Emphysema is one of a group of lung conditions known as chronic obstructive pulmonary disease (COPD).
  • It causes shortness of breath that gets worse and affects more of your daily activities over time.
  • It is most often caused by smoking.
  • Quitting smoking is the best way to slow down the worsening of your symptoms.
  • Emphysema can be managed with inhaled medicines and a pulmonary rehabilitation program.

What is emphysema?

Emphysema is a chronic (long-term) lung condition. It is one of several lung problems that cause chronic obstructive pulmonary disease (COPD).

Your lungs are made up of many little air sacs, called alveoli. In people with emphysema, the walls of the alveoli are damaged. This causes the small airways in your lungs to collapse when you breathe out, making it hard for air to flow into your lungs and even harder for it to flow out.

The damage also makes the alveoli become bigger and less elastic. Over time, your lung tissue becomes stiff and cannot take oxygen into your body as effectively.

Subcutaneous emphysema

The term 'subcutaneous emphysema' refers to air getting in under your skin. This makes it feel crackly when you press on it. It is not necessarily related to lung emphysema.

What are the symptoms of emphysema?

The symptoms of emphysema depend on how severe the underlying lung damage has become.

People with emphysema are often short of breath. As the damage progresses, the periods of breathlessness become more frequent. It becomes harder to do everyday activities or to exercise. Your breathing becomes easier when you rest. Eventually you might become short of breath even after very little physical activity.

People with emphysema may also have:

At times, your symptoms may get worse suddenly. This is known as an exacerbation of COPD. Exacerbations are often caused by respiratory (lung) infections.

CHECK YOUR SYMPTOMS — Use the Symptom Checker and find out if you need to seek medical help.

What causes emphysema?

The most common cause of emphysema is smoking. You are still at risk if you have smoked in the past.

A very small number of people get emphysema because they inherited a faulty gene. This is called alpha-1 antitrypsin deficiency. It means they are missing a protein that normally helps to keep the air sacs of the lungs healthy.

Other causes of emphysema include:

Vaping can also cause emphysema, and like smoking, makes emphysema from other causes worse.

When should I see my doctor?

Call triple zero (000) and ask for an ambulance if you:

  • are so short of breath that you have difficulty talking, walking, sleeping or eating
  • feel confused or sleepy
  • notice that your lips or nails look blue or grey
  • feel an unusual heartbeat (palpitations)

See your doctor if you have symptoms of emphysema. If you have already been diagnosed with emphysema, see your doctor if you have symptoms of an exacerbation of COPD, such as:

It's also important to see your doctor if you have swelling of your feet and legs. This can be a sign of a heart problem.

FIND A HEALTH SERVICE — The Service Finder can help you find doctors, pharmacies, hospitals and other health services.

How is emphysema diagnosed?

Most people with emphysema are diagnosed after 45 years of age, although if you have a faulty gene, you may be diagnosed earlier.

Your doctor can diagnose emphysema by talking to you, examining you and doing a breathing test called spirometry, which measures how well your lungs work.

They may also arrange:

ASK YOUR DOCTOR — Preparing for an appointment? Use the Question Builder for general tips on what to ask your GP or specialist.

How is emphysema treated?

The damage to your lungs caused by emphysema cannot be reversed, but many treatments can help manage your symptoms and improve your quality of life. These treatments improve the flow of air in your lungs and prevent complications.

The type of treatment depends on how severely emphysema is affecting your health and your ability to do things.

Quitting smoking is the best treatment to slow the worsening of emphysema symptoms.

If you have emphysema, inhaled medicines can help open up your airways and reduce inflammation. You may need antibiotics if you have a chest infection.

It's helpful to participate in a pulmonary (lung) rehabilitation program, which provides exercises and education to help you manage your breathlessness. It may help you with:

In more severe cases, people with emphysema may need to breathe oxygen from a portable cylinder. Very occasionally, surgery can be useful.

Other things you can do to manage emphysema include:

What are the complications of emphysema?

Emphysema can make you more likely to develop:

COPD is the fifth most common cause of death in Australia.

Can emphysema be prevented?

The best way to prevent emphysema is to quit smoking.

You can also prevent emphysema by:

Resources and support

Visit the Lung Foundation Australia website for more information and support.

If you are trying to quit smoking, help is available via Quitline on 13 7848.

You can also call the healthdirect helpline on 1800 022 222 (known as NURSE-ON-CALL in Victoria). A registered nurse is available 24 hours a day, 7 days a week.

Other languages

Find information about quitting smoking in a variety of community languages.

Looking for information for Aboriginal and/or Torres Strait Islander people?

See this flipchart for information about COPD for Aboriginal and/or Torres Strait Islander people.

Check out this action plan to help you manage your COPD.

For help with quitting smoking, call Aboriginal Quitline on 13 7848 and ask to speak to a counsellor for Aboriginal and/or Torres Strait Islander people.

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