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Haemophilia Foundation Australia

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders.

HFA works with a network of State and Territory Foundations to ensure everyone with bleeding disorders in Australia has access to the world’s best practice treatment and care.

HFA is a National Member Organisation of the World Federation of Hemophilia, and participates in activities to improve access to treatment and care to people with bleeding disorders around the world.

Vision and mission

HFA’s vision is for active, independent and fulfilling lives for people in our bleeding disorders community.

HFA is committed to inspiring excellence in treatment, care and support.

How Haemophilia Foundation Australia can help

HFA supports people with bleeding disorders and their families through representation and advocacy, education, information and promotion of research.

Programs, apps and tools

Recommended links

Last reviewed: November 2024

Information from this partner

Found 44 results

Hepatitis C Getting It Right evaluation - Haemophilia Foundation Australia

HFA's hepatitis C needs assessment included an evaluation of its work on hepatitis C and bleeding disorders. The report includes personal stories.

Read more on Haemophilia Foundation Australia website

Living with mild haemophilia guide - Haemophilia Foundation Australia

A comprehensive guide to living with mild haemophilia, including diagnosis, genetic inheritance and planning a family, treatment and care, special issues for girls and women and information on living well.

Read more on Haemophilia Foundation Australia website

Factor XI deficiency - Haemophilia Foundation Australia

Brief introductory information about factor XI (11) deficiency, what causes it and how common it is. Includes links to more detailed high quality information on factor XI, including symptoms, diagnosis and treatment. There is also a link to pregnancy planning.

Read more on Haemophilia Foundation Australia website

Inherited platelet function disorders - Haemophilia Foundation Australia

A brief introduction to inherited platelet function disorders and links to more detailed high quality information, including symptoms, diagnosis and treatment.

Read more on Haemophilia Foundation Australia website

What is MyABDR - Haemophilia Foundation Australia

Information about MyABDR, the patient tool to record information about their bleeding disorder-related treatments, bleeds and inventory of treatment stock at home.

Read more on Haemophilia Foundation Australia website

A snapshot of bleeding disorders in females - Haemophilia Foundation Australia

This resource gives an overview of bleeding disorders in girls and women. It covers haemophilia, von Willebrand disease and other rare bleeding disorders. It explains diagnosis, symptoms, treatment, and includes tips and personal stories on self-advocacy.

Read more on Haemophilia Foundation Australia website

Haemophilia and carrying the gene - Haemophilia Foundation Australia

Information for women and girls on carrying the gene alteration causing haemophilia. This answers questions such as can females have haemophilia; what the symptoms are; how to manage bleeding problems; pregnancy and childbirth; and tips from other women who carry the gene.

Read more on Haemophilia Foundation Australia website

von Willebrand disease - Haemophilia Foundation Australia

Information about von Willebrand disorder or disease (VWD), how common it is, how it is passed on, including inheritance, symptoms, diagnosis and treatment.

Read more on Haemophilia Foundation Australia website

Haemophilia - Haemophilia Foundation Australia

Introductory information about haemophilia, including who has haemophilia, types, severity and symptoms, diagnosis, inheritance and treatment.

Read more on Haemophilia Foundation Australia website

Hep C treatments - Haemophilia Foundation Australia

New and effective treatments for hepatitis C are now available and many people with bleeding disorders in Australia have been cured. This page provides information about what to do if you have a bleeding disorder and hep C and haven't had treatment yet and what to do after a cure if you have cirrhosis.

Read more on Haemophilia Foundation Australia website

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