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HeartKids

HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Vision and mission

HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.

How HeartKids can help

HeartKids offer:

  • Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
  • Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
  • Mental health support for people and their families impacted by CoHD
  • HeartKids Helpline services by phone, webchat and email, five days a week
  • In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 897) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App An app designed with help from young people with heart conditions. It’s your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.

Recommended links

Last reviewed: May 2024

Information from this partner

Found 28 results

Exercise for people with childhood onset heart disease - Easy Read - HeartKids

Exercising with Your Heart Condition: Tips and insights on staying active and healthy

Read more on HeartKids website

Childhood Heart Disease- the facts

Information and key facts about childhood heart disease.

Read more on HeartKids website

Sexual health for people with childhood onset heart disease – Easy Read

Sexual Health: Addressing important aspects of intimate wellbeing.

Read more on HeartKids website

Mental health and your heart – Easy Read

Mental health challenges for young people with childhood onset heart disease

Read more on HeartKids website

Starting School: A guide for parents - HeartKids

Information to help parents of children with heart conditions prepare for starting school

Read more on HeartKids website

Growing up with a heart condition – Easy Read

Information on managing CoHD for young people.

Read more on HeartKids website

Alcohol and energy drinks - HeartKids

Information to help young people with childhood heart disease make informed choices about alcohol and energy drinks

Read more on HeartKids website

Mental healthand your heart - HeartKids

Information about mental health for teens and young adults living with a heart condition

Read more on HeartKids website

Growing up with a heart condition - HeartKids

A booklet for teens and young people providing information about growing up with a heart condition

Read more on HeartKids website

Dental and Oral Care - RHD - HeartKids

Information about looking after your teeth when you have RHD

Read more on HeartKids website

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