Vision and mission
Their purpose is to achieve earlier diagnosis and ultimately find a cure.
Their mission is governed by five pillars: patient support, education, research, awareness and advocacy.
These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community, access to the care and treatment that they deserve, raise awareness and knowledge of NETs within the medical community and general public; and encourage and support Australian research in the area of neuroendocrine cancers.
How NeuroEndocrine Cancer Australia can help
They provide the following patient & HCP services and resources:
Patient services:
- NET Nurse – email or phone
- Support Groups - monthly online via Zoom
- Support Groups - face-to-face
- Advocacy
- Facebook Support Groups
- 1:1 Peer Support (Cancer Connect)
- Information sessions
- Clinical Trials listing
- NET Library – publication / articles / videos
Patient resources:
- Fact Sheets
- Nation NET service listing
- Information Booklets
- PLANET App – PROMs
- Treatment & Wellness Care Plan
- Webinars/forums
- Monthly newsletter
- Living with NETs online education program
HCP services:
- Professional accredited Learning
- PLANET Registry
- Clinical In-services
- Patient referrals
- Information booklets
- Newsletter
Programs, apps and tools
A free app is available when you are recruited into the Registry which enables recording of Quality-of-Life scores, performance status, Bristol Stool Scale and vitals (Height, weight and BMI)
